It is with the greatest of pleasure that HAEi and AEDAF have received confirmation from the Royal Household of His Majesty the King of Spain that Her Majesty the Queen has agreed to accept the Presidency of Honor for the HAE Global Conference in Madrid 19-22 May 2016.
In the area of health, the Queen of Spain has devoted herself to encouraging and giving visibility to those suffering from infrequent conditions, known as ‘rare diseases’, and their families, and to the fight against cancer. For her commitment to infrequent diseases, in 2010 the Queen was invited to attend a research awards ceremony in Berlin, Germany; this was the first of her activities abroad. At that occasion Queen Letizia said: “Three million people in our country, many of them children and teens, are suffering from rare diseases. And it is a priority for our society to give greater visibility to and raise awareness of them, and achieve the commitment of us all to their daily struggle.”
See Credencial (in Spanish).