From President Gökben Yurdakul, HAE Turkey
We are so happy to be here and share our accomplishments with you. During the COVID-19 pandemic, we have held a number of online meetings with our patients and their relatives. This has been done in order to gather information about COVID-19 infected people’s troubles and concerns. Also, we have contacted our doctors to ensure the healthy completion of those patients’ treatments. Likewise, we informed our doctors about the complications, troubles, and problems experienced due to COVID-19 vaccinations, so that the correct procedures could be followed.
As always, we ensured that people who reached our association were diagnosed properly and provided information about their treatment. We have been working on the recognition and acceptance of the disease to a great extent, by sharing our emotional experiences. Thanks to our WhatsApp patient group, we have contributed greatly to the study on the psychological and physical effects that patients experience during HAE attacks.
We have submitted our written requests to the relevant state authorities about treatments and demanded changes in the legislation. We expect positive results as soon as possible.
