If it isn’t in your diary already, mark 16 May 2024 for hae day :-)
This is our annual celebration of the HAE community and our focus on awareness-raising efforts. We are already thinking about the global campaign for next year. It will involve time spent on physical and well-being activities converted to steps – and more details will be available in early 2024.
In the meantime, our hae day :-) website has lots of practical information to help you plan your media engagement, community involvement, or social media, as well as lots of inspiration as you start to plan your hae day :-) activities – have a look at our haeday.org website.
Our Member Organizations (MO) raise the bar with their activities’ creativity and their members’ motivation. Here, we caught up with several countries to hear more about what hae day :-) means for them and why you should consider getting involved (if you don’t already).
What does hae day :-) help you achieve, that you can’t do at any other time of year?
“It’s easier to talk to people or raise awareness because there is a global awareness day, and activities are happening worldwide. It acts as a focus and boosts our influence when talking about HAE. As it is a global date, we can get people to help us raise awareness about HAE. hae day :-) helps us meet with our patients and their families, get to know each other, and share our experiences of living with HAE. Come together to commemorate our day.”
– Carla M. Goachet Boulanger, President, Asociación de Pacientes con Angioedema Hereditario del Perú (HAE Peru)
Why should Member Organizations consider getting involved in hae day :-)?
“Participating in hae day :-) offers MOs a unique opportunity to amplify their impact. Organizing activities, large or small, can enable patient organizations to reach a wider audience, educate the public, and create a stronger sense of community among those affected by HAE. It is an opportunity to raise awareness, inspire support, and make a lasting impression on the individuals living with HAE who can contribute to positive change. Join hae day :-) activities to expand our organization’s reach, discover more patients, and improve the treatment environment for patients around the world!”
– Soojin Min, President, HAE Korea
What does hae day :-) help you achieve, that you can’t do at any other time of year?
“hae day :-) helps us provide context where we can talk about HAE and raise awareness. We’ve traditionally celebrated hae day :-) and are now known for it. On the last hae day :-) media representatives contacted our MO advocates to inquire about our plans before HAE Macedonia announced anything. It felt good knowing that they have hae day :-) marked on their calendars.”
– Natasha Jovanovska Popovska, President, ХАЕ МАКЕДОНИЈА (HAE Macedonia)
Why should Member Organizations consider getting involved in hae day :-)?
“For those not promoting hae day :-) you are missing a huge opportunity to bring your community together, which spurs change. We will be stronger with you; the more organizations that participate, the stronger our collective voice. It is a fun way to advocate, educate people, and engage your broader community – the more we get involved, the more we can improve HAE!”
– Members of Board, HAE Canada
