From President Adrienne de Jongh, HAE South Africa:
The Global Access Program importing Ruconest is now running smoothly and proving to be very successful. There is a fair amount of administration involved though and we are grateful that the staff at the Lung Clinic at Groote Schuur Hospital have been so helpful.
We have been busy with the legal work for HAE South Africa to become an official non-profit company and this is almost complete.
There have been another three queries in the last couple of weeks requesting diagnoses which means that awareness must be improving and we have been assisting in the process.