From Chief Regional Patient Advocate Fiona Wardman The 2022 HAEi Global Leadership Workshop in Frankfurt, Germany, was an excellent opportunity to bring together the Member Organization leaders. I was so pleased that many of the countries in my region had a strong presence – Australia, New Zealand, Japan, Pakistan, India, South Korea, Indonesia, and [...]
From Chief Regional Patient Advocate Fiona Wardman Over the last few months, there has been an opportunity for face-to-face meetings with Member Organizations in the Asia Pacific region and South Africa. Also, there has been a lot of communication with countries in my region in the lead-up to the Global Leadership Workshop in Frankfurt, [...]
From HAE South Africa We started an awareness campaign running up to hae day :-) and began by filming three patient stories for inclusion on our social media platforms. We managed to secure seven interviews with various radio stations around the country in the run-up to, and on, the awareness day. We had ten [...]
From Chief Regional Patient Advocate Fiona Wardman The last few months have been busy in the countries in the Asia Pacific region and South Africa. As the 2022 HAEi Global Leadership Workshop invitations have been sent out to the Member Organizations, there has been a lot of interest, and registrations have been completed. I’m [...]
From HAE South AfricaOn 11 January 2022 HAE South Africa embarked on a new social media campaign. As of 28 February, our Facebook reach was up by 955% compared to the previous period, with our Instagram reach growing by 330%. Our new website will be launched in the next couple of weeks.>> Have a look [...]
From Chief Regional Patient Advocate Fiona Wardman For the last few months, I have focused on catching up with the Member Organizations in the Asia Pacific region and South Africa via virtual means. It seems that everyone is looking forward to once again being able to meet face-to-face. The latest tools and resources have [...]
From HAE South Africa HAE South Africa have received our approval as a non-profit company which means we are now able to actively raise funds for our organization. We have recruited two new members onto our committee, Jane Rushton, an HAE patient, and attorney, as well as Sister Sheila Baker, a registered nurse who [...]
From Chief Regional Patient Advocate Fiona Wardman There have been a few focused tasks and projects in the Asia Pacific region over the most recent months, including the rolling out the new member only access courses in Advocacy Academy. During this period, I have attended virtual conferences and symposiums for the region, including the [...]
This input is dated May 2021 In brief Name for organization: HAE South Africa 98 members at 1 Jan 2021 Name of approved HAE treatments: None registered Fun/interesting facts South Africa is a unique country with very resourceful citizens who have accomplished notable things internationally in many fields. South [...]
From HAE South Africa: We are planning a handover from Adrienne de Jongh to Janice Snyman and have restructured our committee to include Jane Rushton, who is in the legal field. Janice is in a new position as COO and will be handling day to day matters. We are still awaiting for our nonprofit [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
gro.ieah@ofni
HAE International (HAEi)
Vejlevej 16, 1.
8700 Horsens
Denmark
gro.ieah@ofni
