From Janice Strydom, HAE South Africa HAE SA started 2023 with the exciting announcement that icatibant, our first treatment for acute attacks of HAE, had been registered. This is a significant milestone for our organization and our patients, and we wish to thank everyone who contributed to this process for their dedication to making [...]
From Regional Patient Advocate Patricia Karani The 2023 HAEi Regional Conference EMEA drew the attention of 9 doctors from different countries in the Sub Sahara Africa. The doctors got a chance to meet and discuss the challenges affecting them in the region and develop mitigation plans to ensure that they do not misdiagnose HAE [...]
From Regional Patient Advocate Fiona Wardman HAE South Africa is making fantastic progress on all fronts, with awareness and education of HAE in the community and acute therapy now registered! From Chairman Janice Strydom, HAE South Africa We are pleased to announce the launch of the Sinovuyo South African Virtual Angioedema Center, the first [...]
From Chief Regional Patient Advocate Fiona Wardman The 2022 HAEi Global Leadership Workshop in Frankfurt, Germany, was an excellent opportunity to bring together the Member Organization leaders. I was so pleased that many of the countries in my region had a strong presence – Australia, New Zealand, Japan, Pakistan, India, South Korea, Indonesia, and [...]
From Chief Regional Patient Advocate Fiona Wardman Over the last few months, there has been an opportunity for face-to-face meetings with Member Organizations in the Asia Pacific region and South Africa. Also, there has been a lot of communication with countries in my region in the lead-up to the Global Leadership Workshop in Frankfurt, [...]
From HAE South Africa We started an awareness campaign running up to hae day :-) and began by filming three patient stories for inclusion on our social media platforms. We managed to secure seven interviews with various radio stations around the country in the run-up to, and on, the awareness day. We had ten [...]
From Chief Regional Patient Advocate Fiona Wardman The last few months have been busy in the countries in the Asia Pacific region and South Africa. As the 2022 HAEi Global Leadership Workshop invitations have been sent out to the Member Organizations, there has been a lot of interest, and registrations have been completed. I’m [...]
From HAE South AfricaOn 11 January 2022 HAE South Africa embarked on a new social media campaign. As of 28 February, our Facebook reach was up by 955% compared to the previous period, with our Instagram reach growing by 330%. Our new website will be launched in the next couple of weeks.>> Have a look [...]
From Chief Regional Patient Advocate Fiona Wardman For the last few months, I have focused on catching up with the Member Organizations in the Asia Pacific region and South Africa via virtual means. It seems that everyone is looking forward to once again being able to meet face-to-face. The latest tools and resources have [...]
From HAE South Africa HAE South Africa have received our approval as a non-profit company which means we are now able to actively raise funds for our organization. We have recruited two new members onto our committee, Jane Rushton, an HAE patient, and attorney, as well as Sister Sheila Baker, a registered nurse who [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
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HAE International (HAEi)
Vejlevej 16, 1.
8700 Horsens
Denmark
gro.ieah@ofni
