From Regional Patient Advocate Patricia Karani I’m delighted to officially welcome Chantelle Manuel and HAE Zimbabwe as our 100th member country. Chantelle is already working hard and has formed a new online patient support group called “HAE Support Group for Zimbabwe.” I shared awareness materials about HAE, and this has assisted the patients in [...]
From Regional Patient Advocate Fiona Wardman In May, I engaged in various activities across my Asia Pacific region to advance HAE initiatives: I worked closely with the HAEi conference team to ensure the Afghanistan patient lead could register for the 2024 HAEi Global Leadership Workshop with a travel grant and coupon code In Bangladesh, [...]
From Regional Patient Advocate Patricia Karani The year has started very positively, with great motivation from doctors and patient leads in my region. I shared the new Women and HAE booklet with the Africa Patients Support Group, which consists mainly of women who are HAE patients and patient leads from Mozambique, Namibia, Kenya, Eritrea, [...]
From Regional Patient Advocate Fiona Wardman During the last few months, I have been working closely with South Africa and India. They are working towards impactful patient meetings aimed at bolstering support and awareness for HAE patients. These gatherings will serve as crucial platforms for patients, caregivers, and healthcare professionals to come together, share [...]
From Janice Strydom, HAE South Africa HAE SA started 2023 with the exciting announcement that icatibant, our first treatment for acute attacks of HAE, had been registered. This is a significant milestone for our organization and our patients, and we wish to thank everyone who contributed to this process for their dedication to making [...]
From Regional Patient Advocate Patricia Karani The 2023 HAEi Regional Conference EMEA drew the attention of 9 doctors from different countries in the Sub Sahara Africa. The doctors got a chance to meet and discuss the challenges affecting them in the region and develop mitigation plans to ensure that they do not misdiagnose HAE [...]
From Regional Patient Advocate Fiona Wardman HAE South Africa is making fantastic progress on all fronts, with awareness and education of HAE in the community and acute therapy now registered! From Chairman Janice Strydom, HAE South Africa We are pleased to announce the launch of the Sinovuyo South African Virtual Angioedema Center, the first [...]
From Chief Regional Patient Advocate Fiona Wardman The 2022 HAEi Global Leadership Workshop in Frankfurt, Germany, was an excellent opportunity to bring together the Member Organization leaders. I was so pleased that many of the countries in my region had a strong presence – Australia, New Zealand, Japan, Pakistan, India, South Korea, Indonesia, and [...]
From Chief Regional Patient Advocate Fiona Wardman Over the last few months, there has been an opportunity for face-to-face meetings with Member Organizations in the Asia Pacific region and South Africa. Also, there has been a lot of communication with countries in my region in the lead-up to the Global Leadership Workshop in Frankfurt, [...]
From HAE South Africa We started an awareness campaign running up to hae day :-) and began by filming three patient stories for inclusion on our social media platforms. We managed to secure seven interviews with various radio stations around the country in the run-up to, and on, the awareness day. We had ten [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
gro.ieah@ofni
HAE International (HAEi)
Vejlevej 16, 1.
8700 Horsens
Denmark
gro.ieah@ofni
