News from South Asia, Germany, Austria, Switzerland, and Israel From Regional Patient Advocate Fanny Schappler 2024 Highlights I’m excited to have joined HAEi for the last quarter of 2024 and have witnessed tremendous growth in South Asia in the last few months; The Nepalese HAE patient group was officially created in October 2024 [...]
From Regional Patient Advocate Fanny Schappler My journey as a Regional Patient Advocate (RPA) I officially began my journey as a Regional Patient Advocate (RPA) in September 2024, supporting the following countries: Germany, Switzerland, Austria, Israel, India, Sri Lanka, Bangladesh, Nepal, Pakistan and Afghanistan. Stepping into this role felt exciting and daunting, but I [...]
On the occasion of hae day :-), a remarkable gathering of medical professionals and patients was arranged by HAE Pakistan at Kabir Restaurant in Peshawar. Miss Khatera Naimi represented HAE Afghanistan to raise awareness and offer support for individuals affected by Hereditary Angioedema. The regional event organizers, Mr. Shakeel Ahmad and Mr. Sami Khan [...]
From Regional Patient Advocate Fiona Wardman In May, I engaged in various activities across my Asia Pacific region to advance HAE initiatives: I worked closely with the HAEi conference team to ensure the Afghanistan patient lead could register for the 2024 HAEi Global Leadership Workshop with a travel grant and coupon code In Bangladesh, [...]
From Regional Patient Advocate Fiona Wardman During the last few months, I have been working closely with South Africa and India. They are working towards impactful patient meetings aimed at bolstering support and awareness for HAE patients. These gatherings will serve as crucial platforms for patients, caregivers, and healthcare professionals to come together, share [...]
From HAE Pakistan HAE Pakistan has been busy in the country to educate and create awareness of HAE. Mr. Shakeel Afridi has arranged productive awareness sessions in medical colleges and institutes. The first session on 28 September was with collaborators at the Rehman Medical College in Peshawar. We had lots of participants who showed [...]
From Regional Patient Advocate Fiona Wardman The countries I look after in the Asia Pacific region have reduced due to HAEi’s newest RPA, Yong Hao Lim, taking them over. Yong Hao now looks after Eastern Asia - the countries included in his region are Singapore, Indonesia, China, Taiwan, Malaysia, and Sri Lanka. You can [...]
From Chief Regional Patient Advocate Fiona Wardman The 2023 HAEi Regional Conference APAC in Bangkok, Thailand, was a success bringing together over 250 HAE patients, family members, physicians, and pharmaceutical companies to learn more about each other and HAE, to talk about advocacy, the importance of working together and the needs for the region. [...]
From Chief Regional Patient Advocate Fiona Wardman The 2022 HAEi Global Leadership Workshop in Frankfurt, Germany, was an excellent opportunity to bring together the Member Organization leaders. I was so pleased that many of the countries in my region had a strong presence – Australia, New Zealand, Japan, Pakistan, India, South Korea, Indonesia, and [...]
Since the last magazine, there has been a focus on a few projects; a couple of these were the hae day :-) “Let’s Take the Next Steps” campaign and rolling out of the Regional Medical Advisory Panel project. All the member organizations within the Asia Pacific region had their history and plans for the [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
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HAE International (HAEi)
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