On the occasion of hae day :-), a remarkable gathering of medical professionals and patients was arranged by HAE Pakistan at Kabir Restaurant in Peshawar. Miss Khatera Naimi represented HAE Afghanistan to raise awareness and offer support for individuals affected by Hereditary Angioedema. The regional event organizers, Mr. Shakeel Ahmad and Mr. Sami Khan [...]
From Regional Patient Advocate Fiona Wardman In May, I engaged in various activities across my Asia Pacific region to advance HAE initiatives: I worked closely with the HAEi conference team to ensure the Afghanistan patient lead could register for the 2024 HAEi Global Leadership Workshop with a travel grant and coupon code In Bangladesh, [...]
From Regional Patient Advocate Fiona Wardman During the last few months, I have been working closely with South Africa and India. They are working towards impactful patient meetings aimed at bolstering support and awareness for HAE patients. These gatherings will serve as crucial platforms for patients, caregivers, and healthcare professionals to come together, share [...]
From HAE Pakistan HAE Pakistan has been busy in the country to educate and create awareness of HAE. Mr. Shakeel Afridi has arranged productive awareness sessions in medical colleges and institutes. The first session on 28 September was with collaborators at the Rehman Medical College in Peshawar. We had lots of participants who showed [...]
From Regional Patient Advocate Fiona Wardman The countries I look after in the Asia Pacific region have reduced due to HAEi’s newest RPA, Yong Hao Lim, taking them over. Yong Hao now looks after Eastern Asia - the countries included in his region are Singapore, Indonesia, China, Taiwan, Malaysia, and Sri Lanka. You can [...]
From Chief Regional Patient Advocate Fiona Wardman The 2023 HAEi Regional Conference APAC in Bangkok, Thailand, was a success bringing together over 250 HAE patients, family members, physicians, and pharmaceutical companies to learn more about each other and HAE, to talk about advocacy, the importance of working together and the needs for the region. [...]
From Chief Regional Patient Advocate Fiona Wardman The 2022 HAEi Global Leadership Workshop in Frankfurt, Germany, was an excellent opportunity to bring together the Member Organization leaders. I was so pleased that many of the countries in my region had a strong presence – Australia, New Zealand, Japan, Pakistan, India, South Korea, Indonesia, and [...]
Since the last magazine, there has been a focus on a few projects; a couple of these were the hae day :-) “Let’s Take the Next Steps” campaign and rolling out of the Regional Medical Advisory Panel project. All the member organizations within the Asia Pacific region had their history and plans for the [...]
This input is dated May 2021 >> View content in اردو In brief Name for organization: Hereditary Angioedema Pakistan 15 members at 1 Jan 2021 Name of approved HAE treatments: None Fun/interesting facts The world’s second highest mountain, K2, is located in Pakistan. Pakistan has all weather seasons at [...]
From Regional Patient Advocate Fiona Wardman I had planned to hold the first HAEi Regional Workshop Asia Pacific in Singapore in April; however, due to COVID-19, the workshop has been postponed until we are all safe to travel again. I’m happy to report that we have two new patient groups in the Asia Pacific [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
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HAE International (HAEi)
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