News from South Asia, Germany, Austria, Switzerland, and Israel From Regional Patient Advocate Fanny Schappler 2024 Highlights I’m excited to have joined HAEi for the last quarter of 2024 and have witnessed tremendous growth in South Asia in the last few months; The Nepalese HAE patient group was officially created in October 2024 [...]
From Regional Patient Advocate Fanny Schappler My journey as a Regional Patient Advocate (RPA) I officially began my journey as a Regional Patient Advocate (RPA) in September 2024, supporting the following countries: Germany, Switzerland, Austria, Israel, India, Sri Lanka, Bangladesh, Nepal, Pakistan and Afghanistan. Stepping into this role felt exciting and daunting, but I [...]
From Regional Patient Advocate Fiona Wardman In May, I engaged in various activities across my Asia Pacific region to advance HAE initiatives: I worked closely with the HAEi conference team to ensure the Afghanistan patient lead could register for the 2024 HAEi Global Leadership Workshop with a travel grant and coupon code In Bangladesh, [...]
From Regional Patient Advocate Fiona Wardman During the last few months, I have been working closely with South Africa and India. They are working towards impactful patient meetings aimed at bolstering support and awareness for HAE patients. These gatherings will serve as crucial platforms for patients, caregivers, and healthcare professionals to come together, share [...]
From Chief Regional Patient Advocate Fiona Wardman The 2023 HAEi Regional Conference APAC in Bangkok, Thailand, was a success bringing together over 250 HAE patients, family members, physicians, and pharmaceutical companies to learn more about each other and HAE, to talk about advocacy, the importance of working together and the needs for the region. [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
gro.ieah@ofni
HAE International (HAEi)
Vejlevej 16, 1.
8700 Horsens
Denmark
gro.ieah@ofni
