This input is dated May 2021 >> View content in 繁體中文 In brief Name for organization: HAE Taiwan 16 members at 1 Jan 2021 Name of approved HAE treatments: Danazol Icatibant (Firazyr®) Fun/interesting facts Lots of delicious snacks. Cheaper to see a doctor. Because Taiwan is small, the transportation is [...]
During the past few months, I have been working with member organizations in my region to nominate physicians for the Regional Medical Advisory Panel (RMAP) project. I am pleased with the confirmation from the nominated doctors who have accepted to be panelists. I look forward to holding the first RMAP meeting in the next [...]
The Asia Pacific region is diverse in terms of how the member organizations are structured. The region has well-established groups and some in their infancy, the others, somewhere in between. Despite the COVID-19 crisis continuing in so many countries, some good work is still being done to continue to create awareness in the region. [...]
From Chief Regional Patient Advocate Fiona Wardman: With the help of the very caring and knowledgeable Dr Shyur in Taipei, HAE International held the first-ever HAE patient meet and greet in Taipei, Taiwan on 19 May 2019. Tony Castaldo and I had the pleasure of meeting patients and carers, listening to their very personal stories and how HAE [...]
