From Chief Regional Patient Advocate Fiona Wardman
The 2023 HAEi Regional Conference APAC in Bangkok, Thailand, was a success bringing together over 250 HAE patients, family members, physicians, and pharmaceutical companies to learn more about each other and HAE, to talk about advocacy, the importance of working together and the needs for the region.
I was pleased to see so many familiar faces and to meet new people I hadn’t yet had the opportunity to get together with.
The Regional Conference brought together people with a shared interest and commitment, motivation, and spirit from Bangladesh, China, Hong Kong, Indonesia, India, Japan, Taiwan, South Korea, Malaysia, Pakistan, Nepal, Thailand, Philippines, Australia, and New Zealand.
I’m excited to see how our working together in this region will improve the quality of life for HAE patients.
Nepal is not yet a member of HAEi, but I am happy to report that Dr. Dharmagat Bhattarai from the Om Hospital & Research Center in Kathmandu participated in the Bangkok conference. Indeed, Dr. Bhattarai, who is a pediatric immunologist and rheumatologist, is the first HAE-knowledgeable physician we have registered in Nepal, where there are now five diagnosed patients. They can, at this stage, only be treated with danazol or tranexamic acid. Information on the hospital can be found at here.
Vietnam is another country still waiting to become a member of the HAEi family. Here we have registered the Allergy and Clinical Immunology Center of the Vinmec International Hospital Times City in Hanoi as the first HAE-knowledgeable hospital. >> For further information on the hospital, please see here.
