News from South Asia, Germany, Austria, Switzerland, and Israel From Regional Patient Advocate Fanny Schappler 2024 Highlights I’m excited to have joined HAEi for the last quarter of 2024 and have witnessed tremendous growth in South Asia in the last few months; The Nepalese HAE patient group was officially created in October 2024 [...]
My name is Khatera Naimi, and I am the representative of Afghan HAE patients. I was supposed to participate in this conference, but unfortunately, due to barriers in visa issuance, I could not come to Denmark and join you all. I represent a vulnerable group of patients who have no supporters in Afghanistan. Additionally, [...]
From Regional Patient Advocate Fanny Schappler My journey as a Regional Patient Advocate (RPA) I officially began my journey as a Regional Patient Advocate (RPA) in September 2024, supporting the following countries: Germany, Switzerland, Austria, Israel, India, Sri Lanka, Bangladesh, Nepal, Pakistan and Afghanistan. Stepping into this role felt exciting and daunting, but I [...]
From Regional Patient Advocate Fiona Wardman In May, I engaged in various activities across my Asia Pacific region to advance HAE initiatives: I worked closely with the HAEi conference team to ensure the Afghanistan patient lead could register for the 2024 HAEi Global Leadership Workshop with a travel grant and coupon code In Bangladesh, [...]
From Regional Patient Advocate Fiona Wardman During the last few months, I have been working closely with South Africa and India. They are working towards impactful patient meetings aimed at bolstering support and awareness for HAE patients. These gatherings will serve as crucial platforms for patients, caregivers, and healthcare professionals to come together, share [...]
From Regional Patient Advocate Fiona Wardman The countries I look after in the Asia Pacific region have reduced due to HAEi’s newest RPA, Yong Hao Lim, taking them over. Yong Hao now looks after Eastern Asia - the countries included in his region are Singapore, Indonesia, China, Taiwan, Malaysia, and Sri Lanka. You can [...]
From RPA Fiona Wardman We have welcomed HAE Afghanistan to our family in the last few months. As we all know, HAE is a burdensome disease, and in most of our countries, we have access to an orderly “state of the nation”; however, our HAE family in Afghanistan has many more hurdles than just [...]
HAE Afghanistan Afghanistan · South Asia On this page we have pulled together presently available information relevant for HAE patients and caregivers in Afghanistan. HAE online in Afghanistan Visit us on Facebook Visit regional [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
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Fairfax City, VA 22030
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HAE International (HAEi)
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8700 Horsens
Denmark
gro.ieah@ofni
