On 16 May each year, HAE patient organisations from around the world, led by the HAEi, the international umbrella organisation for the world’s HAE patient groups, come together to support awareness of HAE. hae day :-) aims to raise global awareness to ensure each and every patient receives faster diagnosis and the care they need to lead a better life.
Pharming Group N.V. is proud to support hae day :-) 2019. This year, Pharming employees took part in the first hae day :-) virtual walk/run, a fundraising event set up by the HAEi to support:
- The Pam King HAEA Scholarship Program, providing financial support for HAE patients seeking to improve their lives through academic achievement
- The HAEA Compassion Fund, which offers financial assistance to patients in need who must travel to see an HAE medical specialist
- The Research Fund, pioneering innovations in HAE science
Sijmen de Vries, Chief Executive Officer of Pharming, commented:
“We are proud to support hae day :-) again this year as we renew our commitment to making a positive difference to patients with HAE and their families.”