‘TOGETHER AGAIN’ for the 2022 HAEi Global Leadership Workshop

We look forward to welcoming leaders from our 95 member organizations, HAE Physicians/Scientists, the HAEi Youngsters’ Advisory Group, and industry sponsors to the 2022 HAEi Global Leadership Workshop, which will take place in Frankfurt am Main, Germany, from 6 to 9 October 2022.

We are excited to announce that we will offer on-site translation through an innovative advanced technology for the 2022 HAEi Global Leadership Workshop. This translation service called “Wordly” provides simultaneous translation for 20+ languages.

HAEi Executive Vice President & COO Henrik Balle Boysen says: “The workshop agenda offers learning opportunities and plenty of time for HAEi friends to interact. We are planning sessions to provide updated information on HAEi’s suite of technology solutions that have been specifically designed to help our leaders manage and build their advocacy organizations. Other topics to be addressed include newly approved HAE medicines, clinical trials and the 14 therapies in the pipeline, and partnering with local HAEi-Ga2len ACARE Centers. In addition, the workshop’s Scientific Track Co-Chairs, Professor Bruce Zuraw, Professor Konrad Bork, and Professor Marcus Maurer have developed a medical/scientific program that will address two areas of focus: Improving Diagnosis and Management of HAE, and Normalizing HAE Patients’ Lives.”

According to Deborah Corcoran, HAEi’s Chief Specialist Projects and Research, the Scientific Track Co-chairs welcome abstracts on topics related to each area of focus as outlined below:

Improving Diagnosis and Management of HAE
New/improved diagnostic approaches, prodromal symptoms, screening, markers of HAE, innovative treatment/management methods, and patient registry/real-world data. 

Normalizing HAE Patients’ Lives
The impact of HAE on patient quality of life (work/education achievement, social life, and relationships), the psychological impact of HAE, the role of comprehensive HAE centers, the importance of a multidisciplinary approach to treating HAE, the importance of research networks, and real-world examples of normalizing patients’ lives.

The abstract submission deadline is 15 July 2022. Email notifications regarding decisions on abstracts will be sent in mid-August 2022. 

Please check our website for the workshop at glw22.haei.org frequently for the latest information on sessions, exhibitor information, and more. We look forward to seeing you in October!