Rikke

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So far PlusR has created 123 blog entries.

News from Central Eastern Europe, Benelux and Middle East

2021-04-05T20:05:59+02:00April 5, 2021|Belarus, Central Asia, Egypt, Europe, HAEi News, Jordan, Kasakhstan, Kazakhstan, Lithuania, Middle East, Ukraine, United Arab Emirates|

The recent months have been busy with plenty of advocacy activities for patients in Central Eastern Europe, Benelux and the Middle East. This period was full of virtual meetings with member organizations, both individual and group, during which we discussed important projects delivered and implemented by HAEi. It is truly amazing to be part [...]

News from Mediterranean, North Africa and British Isles

2021-04-05T20:00:12+02:00April 5, 2021|Africa, Algeria, Europe, France, HAEi News, Portugal|

Initially, I am happy to inform you that the HAEi Emergency Room poster is now translated into Spanish, French and Arabic.  On 5 December 2020, HAE Portugal (ADAH) held its annual meeting, this time in a virtual format. Around 45 participants took part, and Raquel Oliveira, the President of HAE Brazil (Abranghe) and I [...]

News from Asia Pacific

2021-04-05T19:56:37+02:00April 5, 2021|Australia/Oceania, China, East & Southeast Asia, HAEi News, India, Japan, Singapore, South Asia, South Korea, Taiwan|

During the past few months, I have been working with member organizations in my region to nominate physicians for the Regional Medical Advisory Panel (RMAP) project. I am pleased with the confirmation from the nominated doctors who have accepted to be panelists. I look forward to holding the first RMAP meeting in the next [...]

News from Sub Sahara Africa

2021-04-05T19:52:49+02:00April 5, 2021|Africa, HAEi News, Kenya, South Africa, Tanzania|

In Ghana, we have been able to start discussions on HAE with the Immunology Society of Ghana (ISG). We have also been able to liaise with Rare Disease Ghana for purposes of raising awareness amongst the general public. We have established new doctor contacts in Tanzania. We are in the process of holding further [...]

News from South America and Mexico

2021-04-05T19:48:08+02:00April 5, 2021|Colombia, HAEi News, Mexico, North America, Peru, South America|

Over the past few months, I have been working with the member organizations in my region and informing them about new resources like the Emergency Room Poster and the new HAE TrackR app.  There has been a lot of work and communications on collecting information for the hae day :-) 10th anniversary campaign.   [...]

News from Nordics, Germany, Austria and Switzerland

2021-04-05T19:49:09+02:00April 5, 2021|Austria, Denmark, Europe, Finland, Germany, Greenland, HAEi News, Iceland, Norway, Sweden, Switzerland, The Faroe Islands|

It has been a pleasure starting as the Regional Patient Advocate for the Nordics and Germany, Austria and Switzerland. It is fantastic to meet – mostly online – with many of the member organizations’ representatives as there are so many things to talk about. And not least for me to learn from these amazing [...]

HAEi staff news

2021-04-05T21:12:54+02:00April 5, 2021|HAEi News|

Rachel Annals has been appointed as Assistant to the Chief Regional Patient Advocate. This action allows HAEi to accommodate the phenomenal growth of the Regional Patient Advocacy program.  Rachel will support the Chief Regional Patient Advocate, Fiona Wardman, and the Regional Patient Advocates, as they implement the programs and services that fuel the global [...]

Global Perspectives #1 2021 is ready for you

2021-04-05T20:54:46+02:00March 31, 2021|HAEi News|

The first 2021 edition of our magazine Global Perspectives is out now. This time you will, among many other items, find articles on these topics: 10 years anniversary of hae day :-) HAEi launces new app – HAE TrackR Regional advisory groups define their top 5 challenges Exiting news from the HAEi Youngsters' Community Launch of [...]

Welcome back

2021-02-03T15:22:47+02:00February 1, 2021|HAEi News|

12 months ago, Steen Bjerre left HAE International to pursue other opportunities. However, he has missed his many good HAE contacts, so by mutual agreement, he will return to the role of HAE International's Communications Manager with effect from 1 February 2021. Among other things, Steen will be responsible for content for our magazine [...]

HAEi Webinar Brief about HAE and COVID-19 vaccine

2021-01-13T10:00:27+02:00January 13, 2021|COVID-19, HAEi News|

“Have no fear. Take the vaccine.” That is, in short, the main message from HAEi’s Chief Medical Advisor Prof. Marcus Maurer, during an interview with HAEi’s President and CEO Tony Castaldo. Prof. Maurer says that there are no medical or scientific concerns preventing people with HAE from getting the COVID-19 vaccine. HAEi recommends that [...]