Rikke

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So far PlusR has created 13 blog entries.

News from Sub-Sahara Africa

2019-05-15T14:24:33+00:00April 7, 2019|Africa, HAEi News, Kenya, South Africa|

From Patricia Karani, Regional Patient Advocate, Sub-Sahara Africa SOUTH AFRICA The first patient meeting was held 14 March 2019 in Cape Town. In attendance were doctors and patients who learned more on HAE and how best to gain access to emergency medication. SENEGAL HAEi has been able to reach collaboration with the Africa Society of Primary [...]

HAEi Central Eastern Europe Conference and Workshop 2018

2019-05-15T16:49:29+00:00January 14, 2019|Belarus, Czech Republic, HAEi News, Hungary, Kasakhstan, Poland, Russia, Ukraine|

The HAEi Central Eastern European region is a massive one consisting of 12 countries with a population close to 300 million people – and with only around 15 per cent of all HAE patients diagnosed. Therefore, this region requires an individual approach and hands-on assistance in activities related to advocacy, gaining access to and [...]

HAEi South Eastern Europe Workshop 2018

2019-05-15T16:48:20+00:00January 14, 2019|Albania, Bulgaria, Croatia, HAEi News, Montenegro, North Macedonia, Romania, Serbia, Turkey|

By Natasa Angjeleska, HAEi Regional Patient Advocate South Eastern Europe Before being nominated as HAEi Regional Patient Advocate for the South Eastern Europe countries (SEE), I established communications through my colleagues from HAE Macedonia with some of the HAE patients in this region. We were motivated by the will to meet with patients from neighboring [...]