From President Adrienne de Jongh, HAE South Africa: The Global Access Program importing Ruconest is now running smoothly and proving to be very successful. There is a fair amount of administration involved though and we are grateful that the staff at the Lung Clinic at Groote Schuur Hospital have been so helpful. We have been busy with the legal work [...]
From President Adrienne de Jongh We are in the process of registering a nonprofit company so that we can in future access funding and consolidate the organization. We have increased our register of patients to 90. In July Hana Faulds attended the youth camp in Atlanta and learnt lots about advocacy, which we intend to incorporate in future plans. Here [...]
A ‘one-of-a-kind’ medication access program from HAE International is now successfully delivering potentially life-saving medication to HAE-patients in South Africa. “As no modern medications have been commercially available in South Africa until now, HAE patients have been unable to access them. The HAE International Global Access Program offers a regulatory compliant process that allows healthcare [...]
HAE SOUTH AFRICA HAE SA South Africa · Africa On this page we have pulled together presently available information relevant for HAE patients and caregivers in South Africa. HAE online in South Africa Visit us on [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
gro.ieah@ofni
HAE International (HAEi)
Vejlevej 16, 1.
8700 Horsens
Denmark
gro.ieah@ofni
