From CEO Fiona Wardman, HAE Australasia
HAE Australasia is proud of the collaboration with HAEi on the Elizabeth Macarthur Virtual Angioedema Centre (EMVAC). The idea of a virtual center came from Professor Connie Katelaris to overcome the challenge of patients being unable to access specialist HAE medical advice and support due to the vast distances in Australia. EMVAC offers a booking system for phone and video consultations and has access to appointments with clinical immunologists, nurses, and a clinical psychologist. Patients will soon have more specialists available as we add appointments with a gynecologist and a genetic counselor. EMVAC – servicing both Australia and New Zealand – is open to healthcare professionals to gain information on HAE.
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The Australasian Society of Clinical Immunology and Allergy (ASCIA) held its conference in Melbourne as a hybrid event this year. HAE Australasia took part by having a stand full of information for healthcare professionals attending the conference. After not having a face-to-face conference over the past two years due to the COVID-19 pandemic, it was great to reconnect with everyone, including pharmaceutical partners, and talk about our programs and initiatives.
HAE Australasia has received ethics approval for the HAEi Pharmaco and Socioeconomic Survey in Australia and New Zealand. This survey is open to patients and their family members, and we look forward to using the collated data to assist us in accessing more treatments for HAE patients.
