From CEO Fiona Wardman, HAE Australasia
HAE Australasia received ethics approval to run the HAE pharmaco and socioeconomic/quality of life survey. This critical survey is for patients and their family members in Australia and New Zealand. We encourage all our members to take the time to answer the questions to ensure their journey with HAE is included in the outcomes. The outcomes of this research-based survey will have significant gains in terms of unique insights into the lives of HAE patients that can be communicated to different stakeholders.
The 2022 HAEi Global Leadership Workshop held in Frankfurt, Germany, in October was an excellent opportunity to bring HAE Australasia’s leaders to meet with other global leaders. Connections and friendships were made, and we learned more about HAE and HAEi tools and resources to assist our path forward with HAE Australasia. It was also the first opportunity for the Board Members across our two countries to meet face-to-face since before the pandemic.
Our HAE Australasia Youngster Jess Bogoyevitch has submitted a project to the HAEi LEAP program. We have our fingers crossed that her submission is successful so we can connect our youth in Australia and New Zealand.
