From President Mihaela Šogorić, HAE Croatia

On 13 May 2023, an electoral assembly was held in Tuheljske Toplice where the Board of Directors was elected. With Ante Čobanov as Vice-President and Saša Pavlić as Secretary of HAE Croatia, I was elected President for another term.

After the assembly, doctors dealing with HAE arranged a lecture for us patients and our family members. Prof. Jasminka Milas Ahić from Clinical Hospital Centre Osijek spoke on “Genetics of HAE?”, Primarius Marko Barešić, MD, PhD from Clinical Hospital Centre Zagreb gave a talk on “Short-term and long-term prophylaxis of HAE”, and Boris Karanović, MD, from Clinical Hospital Centre Zagreb spoke about “Pregnancy and HAE”. Furthermore, Marin Petrić, MD, from Clinical Hospital Centre Split addressed the topic “HAE patient-physician communication”, while Primarius Ljerka Čulav, MD, PhD from General Hospital Šibenik spoke about “Upcoming drugs for the treatment of HAE”. Also, there was a presentation by Jelena Vukić, med. tech. from General Hospital Šibenik on “Education on self-administration of medicine”.

After the lectures, the administration of Tuheljske Toplice, in support of hae day :-) 2023, lit up the Mihanović Castle in purple. We thank them very much for that.

The meeting continued on 14 May 2023, with the psychological workshop of Maja Batista, PhD, clinical psychologist from Clinical Hospital Center Sestre Milosrdnice. The workshop was attended by all patients, family members and all nurses.

On hae day :-) 2023, the city of Osijek provided support to patients and lit the Osijek Pedestrian Bridge in purple. At 8:00 p.m., a few citizens, patients, nurses, and doctors from the Osijek Clinical Hospital Center gathered at the bridge. The event was also covered by the media.

We would like to thank everyone who, through their engagement, tries to bring this rare disease closer to the public and who are always with us in our small HAE community.

There has been a change in the primary HAE Croatia contacts as Davorka Grbić is Vice President and Sasha Pavlić is Secretary while I am President.

Our contact information can be found on the country page for Croatia. You might also want to have a look at the HAE Croatia Facebook page.