From Mihaela Sogoric, HAE Croatia The Association of Patients with Hereditary Angioedema HAE Croatia successfully organized the 3rd meeting of parents and children suffering from HAE with pediatricians in Tuheljske toplice. The pediatricians chose very good lecture topics and, in my personal opinion, this was the most successful meeting so far. Saturday, September 30, [...]
From Regional Patient Advocate Natasa Angjeleska This summer was not only for taking time to rest and vacation but also for finalizing preparations and facilitating Q&A regarding the 2023 HAEi Regional Conference EMEA with Member Organization leads, individual patients/caregivers, physicians, and pharma representatives. Although I was busy sharing demands for invitation letters for some [...]
From President Mihaela Šogorić, HAE Croatia On 13 May 2023, an electoral assembly was held in Tuheljske Toplice where the Board of Directors was elected. With Ante Čobanov as Vice-President and Saša Pavlić as Secretary of HAE Croatia, I was elected President for another term. After the assembly, doctors dealing with HAE arranged a [...]
From Regional Patient Advocate Natasa Angjeleska Most of the focus at the beginning of the year was on the announcement of the 2023 HAEi Regional Conference EMEA and applications for travel grants for interested participants. We have a relatively large group of participants from South Eastern Europe that have applied for and received travel [...]
From Regional Patient Advocate Natasa Angjeleska According to the representatives from countries in my region, the most important event of 2022 is definitely the HAEi Global Leadership Workshop held in Frankfurt, Germany. There was a lot of positive energy, and it was terrific to meet face to face. All the sessions were excellent, and [...]
From President Mihaela Šogorić, HAE Croatia HAE Croatia successfully organized the second assembly and annual meeting with doctors on 14-15 May 2022. The meeting began with the submission of the financial report on the work of the Association in 2021. The agenda, plan, and program for 2022 have been successfully adopted. At the end [...]
From Regional Patient Advocate Natasa Angjeleska I have had intense communication with the Member Organizations making sure that they were aware of the HAEi newsletter announcing the Global Leadership Workshop in October 2022. In addition, I had continued contact with some of them about the need for translation at the workshop. I’m happy that [...]
From President Michaela Sogoric, HAE Croatia In collaboration with psychologist Maja Batista, MD and clinical immunologist Višnja Prus, MD, PhD, HAE Croatia has designed a brochure for parents, children’s guardians and adolescents. The brochure named “Psychosocial aspects of HAE” is made in the form of an educational book that will be distributed at the [...]
From Mihaela Šogorić, President of HAE Croatia HAE Croatia organized a gathering during the weekend 2-3 October 2021 in Tuheljske Toplice. It was the first such encounter in Croatia. The gathering began with the speech of Ljerka Karadža Lapić, MD of otolaryngology, working in the Clinical Hospital Center Šibenik, who greeted participants in the [...]
From Regional Patient Advocate Natasa Angjeleska In October, I was focused on stirring up the countries’ interest in HAEi resources. I invited patient representatives to a member organization online meeting for my region, where we had an opportunity to discuss the situation regarding access to therapies, new initiatives, challenges etc. in the past period. [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
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