In the course of December 2020 and January 2021, I held online meetings with patient representatives from Montenegro, Greece, Albania and Bosnia and Herzegovina. Some of the patients wanted to hear details about the vaccines for COVID-19 because they feel insecure about the safety of people with HAE. I have re-shared the link to [...]
From Regional Patient Advocate Natasa Angjeleska I have had continuous communication with patient organizations, pharma and physicians in the past period. Most frequently the newly established patient organization from Croatia informed me and consulted about their plan for activities in the next couple of months, including children’s gathering and activities for the youngest members [...]
From Regional Patient Advocate Natasa Angjeleska I have had communication via e-mail with the patient groups and the patient organizations in my region to explain to them the establishing, the aim and the operation of the Regional Advisory Group (RAG) in Southeastern Europe. I requested the nomination of an Advisor from each country and [...]
By Natasa Angjeleska, Regional Patient Advocate for South Eastern Europe: We successfully managed to realize the fourth regional HAE International South Eastern Europe workshop at the Marriott Hotel in Skopje, North Macedonia 27-29 September 2019. We had 85 participants representing 11 countries from the region, including one guest physician coming from Belarus that expressed interest to join us. The composition of [...]
From Regional Patient Advocate Natasa Angjeleska: Two new countries have been added to my region: Greece and Cyprus. I already have frequent and dynamic communication with patient representatives from Greece, as they were participating in the workshop in Skopje. I plan to communicate with the patient representatives from Cyprus in the coming period.
On 27 May 2017, a scientific HAE symposium, entitled “Current approaches in the management of patients with Hereditary Angioedema (HAE)”, was held in Athens, Greece. Medical experts from the country’s largest treatment centers welcomed numerous colleagues to discuss topics in the fields of diagnostics, therapy, and patient management. Of special interest were the presentations from [...]