From Jørn Schultz-Boysen, Vice President, HAE Scandinavia
“Stronger Together”: Highlights from the 2023 Scandinavian Conference by HAE Scandinavia in Malmö: The welcoming city of Malmö, Sweden, played host to a memorable gathering from 10-12 November 2023, as HAE Scandinavia proudly presented the 5th Scandinavian Conference. Embracing the theme “Stronger Together,” more than 100 participants from Sweden, Norway, Denmark, and a few from Finland convened to share insights, experiences, and hopes for the future.
A Warm Start to an Empowering Weekend: The conference began on a high note on Friday evening with a delightful tapas buffet, setting the stage for networking and exchange. The opening presentation, focusing on the strength of the mind and managing anxiety, was not only inspiring but also a fitting precursor to the enriching discussions that followed.
A Saturday Packed with Knowledge and Inspiration: Saturday’s agenda started bright and early, featuring a presentation by HAE Scandinavia on the significance of being part of a member organization. The talk illuminated the myriad benefits for patients and caregivers, setting a tone of inclusivity and support.
The morning also showcased a live demonstration of HAE TrackR and HAE Companion, innovative tools designed to aid HAE management. The country-specific breakout sessions that followed allowed participants from the three Scandinavian countries to delve into issues uniquely relevant to them.
The emotional pinnacle of the day was a patient’s personal story — a poignant, honest account that resonated deeply with everyone present. It was a powerful reminder of the human side of HAE, beyond statistics and medical discussions.
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Afternoon Sessions: Motivation, Medical Insights, and More: Post-lunch, the conference’s energy was reignited by motivation expert Mark Anthony. His practical advice on fostering motivation was further enriched by an engaging live interview with Nanna and Victoria, two youngsters and board members of HAE Scandinavia, who shared their experiences and insights.
Professor Markus Magerl from Charité University Hospital in Berlin graced the stage with his talk “HAE, the Future….and Everything.” His expertise offered a hopeful glimpse into the advancements in HAE treatment and the promising future awaiting patients.
Innovative Conclusions and Leisurely Interludes: The conference’s official program concluded with a segment titled “One More Thing.” Here, Victoria presented her learnings from the HAEi LEAP 23 class and introduced “Sums Up” — an upcoming app designed to inform and uplift the HAE community, a testament to the innovation and commitment within our ranks.
Attendees also enjoyed some leisure time exploring one of Scandinavia’s largest shopping malls, a welcome break before reconvening for a “hyggelig” dinner that facilitated further networking and fun.
Looking Ahead with Optimism and Unity: The conference wrapped up on Sunday with the General Assembly of HAE Scandinavia. It was heartening to see familiar faces — patients, caregivers, healthcare professionals, and pharma representatives — all united in their dedication to the HAE cause.
As we reflect on the success of the conference, the theme “Stronger Together” resonates more than ever. It’s in these gatherings that we find the strength to face HAE with renewed vigor and shared wisdom. We eagerly anticipate our next meeting, knowing that our collective efforts and connections are making a real difference in the lives of those affected by HAE.
