From Natasha Jovanovska Popovska, HAE Macedonia
HAE Macedonia – association of patients and families with HAE – celebrated hae day :-) by organizing a visit for HAE patients and their families to the Lesnovo Monastery and the nearby caves in Macedonia.
The event raised great interest among patients with HAE and their families and happened in an informal, friendly atmosphere of exchanging experiences on dealing with HAE. The walk was pleasant, the landscape and nature surrounding the Monastery were serene and calming, and the entire experience was quite enjoyable.
The celebration of this important day for over a decade has significantly helped in raising awareness of HAE, which resulted in available medications in many countries of the world. In addition to raising awareness, the day has created a platform for bonding of patients and their families, which is also important for better processing the hardships of having HAE.
The motto of the hae day :-) “Many faces, one family” signifies the importance of support and care for all people suffering from HAE throughout the world, who are united by a common thread: hereditary angioedema. The motto embraces the possibility of belonging to a close-knit community – HAEi – that provides support, lends a hand and comfort and gives inspiration and motivation to fight together as a global family for our rights to medications, education, employment, and social engagement.
