From HAE Macedonia
HAE Macedonia organized an hae day :-) event on 14 May 2022 in order to raise awareness among the general public. Supported by the dance studio Eureka the event attracted a great audience, and we distributed T-shirts with the hae day :-) logo for the dancers and people who recorded events on the HAEi website. A beautiful story and a coloring book – ‘The Rare Boy and the Talkative Balloon’, authored by Natasha Angjeleska, were distributed to passers-by. Furthermore, national Macedonian TV covered the event on the 8 o’clock news, presenting both stories of patients and information on the disease.
In the past ten years, hae day :-) has for HAE patients in Macedonia not only been an opportunity to raise awareness among the general and medical public, but it has also become a celebration of waking up the full potential in HAE patients with the prospect of them becoming patient advocates.
We are happy to inform you that North Macedonia has its first ACARE Center: The University Clinic of Dermatology in Skopje, headed by Prof. Dr. Vesna Grivcheva-Panovska. You will find contact information on the country page for North Macedonia.
