From President Sarah Smith, HAE Spain (AEDAF)
Activities: We do not plan to hold any face-to-face events in 2021 due to the ongoing pandemic. We are involved in various activities, including a documentary for hae day :-) 2021, informative online training courses and programs, a burden of illness survey, etc. We also plan to begin very soon a survey to understand the differences in patient access to treatment and modern HAE therapies depending on place of residence, as there are still obvious and glaring differences in patient care across Spain’s 17 autonomous regions.
