From President Helene Saam, HAE Switzerland
We would like to thank Mediaplanet and BioCryst for the production of a short video for Rare Disease Day 2023. You can watch the video here.
Also, we have produced a film explaining HAE to patients as well as anyone else interested. The film explains in non-medical language what triggers the disease, how the processes in the body work and what can be done about it. The film – with English and German subtitles – can be seen here.
Let us spread knowledge about HAE via social media – please follow us on Instagram, link to us on Facebook, and chat with us on WhatsApp. See our social media platforms here.
On 29 April 2023 we were able to welcome 52 people to our patient meeting in Olten.
Among them were again numerous doctors, representatives of the various pharmaceutical companies. We had a varied program with interesting topics about the film “HAE – Simply Explained”, “What medication is available to HAE sufferers in Switzerland?”, “For adults, children and adolescents”, “State of Switzerland HAE Cohort Database”, “The route of new medicines”, and information from the Board of Directors.
We fortified ourselves with a fine lunch buffet before the afternoon program. A bus took us to the museum of old locomotives and wagons of the Swiss Railways, and at the end, we had a final aperitif before the journey home.
