From HAE Switzerland:
The Swiss HAE Association turned 20 years of age on 2 September 2021. An anniversary excursion with our members and our HAE network was planned. However, due to the spread of the coronavirus and the difficulties in assessing the situation, we had with a heavy heart to cancel this trip already back in March.
We have, after all, been able to celebrate the anniversary properly by surprising our HAE members and our HAE network with an HAE anniversary biscuit tin. This HAE anniversary biscuit jar is a special limited edition printed with this picture especially for us. We asked our HAE members and our HAE network to review the last 20 years with us over coffee or tea and, of course, with the delicate biscuits.
The best thing that could ever happen for the Swiss HAE patients was that on 2 September 2001, the HAE Switzerland was founded by Paula and André Hunkeler, Pia Wyss, Pascal Gisi, and Helene Saam. Life with HAE has improved a lot for Swiss HAE patients over the past 20 years as they are now nationally and internationally networked through HAE Switzerland.
There are finally many HAE experts in Switzerland who are very familiar with the clinical picture of HAE. Ten HAE centers have been founded, and today, Swiss HAE patients have six different HAE drugs available that greatly improve life with HAE. Another HAE drug – that is Berotralstat (Orladeyo) – is awaiting approval for Switzerland from Swiss-Medic. This is very good news!
At this point, we would like to thank everyone who has contributed over the last 20 years to making life with HAE so much better for Swiss HAE patients. And now we wish that we can meet again soon and that we can finally exchange ideas again.
