From Maria (Marijk) Beekman-Kortekaas, President HAE the Netherlands
We’re back! For years, HAE the Netherlands has not been very active. A year ago, a new board took over, and we started to rebuild the organization.
A lot has changed since then. We became more active on social media and launched our Instagram account: instagram.com/hae.qenl. This is an excellent tool to stay in touch with the international HAE community and to share news and information with HAE patients in the Netherlands. Instagram is also very helpful in keeping in touch with the youngsters in our country. We are in the process of establishing a youngsters’ community.
One of our goals is to bring HAE patients up to date on everything concerning HAE. That’s why we’re working on a new website. We’re planning to launch it in the second half of September.
We’re pleased to announce that on 7 October 2023, we’ll be hosting a live event for HAE patients in the Netherlands. It will be a day filled with interesting presentations by HAE experts, and of course, there will be a chance to share experiences with fellow patients.
If you’re an HAE patient living in the Netherlands and you want to attend this event, send an email to ln.eq-eah@neregnoj
