From Carla M. Goachet Boulanger, President, HAE Peru
One of the goals of the 2023 proposed by the Board of Directors of HAE PERU was to encourage, motivate, and support the participation of youngsters from all over Peru in the various activities of the association, always respecting the voluntary initiative of each one of them, since we are aware that strengthening the initiatives and participation of young people will make the Association last over time and in this way continue to improve the work we have been doing.
Last year in November, we met Carla Rivas, a 14-year-old girl diagnosed with HAE. We welcomed her to the AEH PERU Family with all our love, and since then, we have conveyed our full support. In May, she gave us pleasant news: she was doing a school research project on HAE together with some classmates, research that was later presented and exhibited in their educational center. For this reason, the family of HAE PERU is grateful for their commitment to disseminate and raise awareness of this rare disease.
Given such a welcome initiative, HAE PERU made available to Carla and her classmates various materials that could contribute to disseminating HAE in her school, including the banner with the design provided by the HAEi.
The objective of encouraging the youngsters’ participation was greatly reinforced thanks to the first HAEi LEAP 2023 Educational Program organized by HAE International, in which María Fe and Luis Eduardo had the opportunity to participate and which we will soon begin to see its fruits.
Likewise, Kamila’s participation as a member of the HAEi Youngsters’ Advisory Group makes us feel that we are on the right track when we think of the youth of HAE PERU. We hope that Carla, Kamila, Luis Eduardo, and María Fe will be an inspiration so that more young people participate every day in creating awareness of HAE, especially in our country, that is so needed.
