This article is taken from an extensive feature on the 2023 HAEi Regional Conference APAC, published in Global Perspectives #1 2023

APAC’s First Youngsters Track!

By Nevena Tsutsumanova, Youngsters’ Community Coordinator

What a weekend in Bangkok, Thailand!

Young people from the Asia Pacific region joined the Youngsters Track at the 2023 HAEi Regional Conference APAC. The youngsters spend the morning, learning about the HAEi Youngsters Community, storytelling, and how to get more involved in the global HAE community.

Dr. Narissara Suratannon stopped by to talk to our youngsters about understanding HAE, how HAE changes from adolescence to adulthood and the importance of having an HAE management plan.

The morning continued with a session about how storytelling can empower a youngster’s personal advocacy journey. We are all storytellers and it is important that young advocates recognize that words have power and stories can change the world.

After the morning activities concluded, youngsters spent some time networking before rejoining the main Patient Track program.