From Regional Patient Advocate Javier Santana
During recent months, many of the patient groups in the Central America and Caribbean region have worked hard to gain access to HAE drugs in their countries. Not least, patients from Costa Rica and Panama have held multiple meetings with government representatives seeking to finally achieve the acquisition of treatments.
Due to the behavior of the government leaders of various countries, a new strategy has been promoted in the Central America and Caribbean region for representatives and legislators to promote laws aimed at protecting people with HAE and guaranteeing the purchase of medicines for patients. Leaders of some patient groups have acquired laws from other countries around the world to share with representatives of their legislatures to draft and create laws in favor of HAE and direct governments to protect the right to receive medicines and fair treatment for people with HAE.
New information has emerged in the region about the distribution of medications for HAE in some countries. Representatives of many companies that distribute HAE medicines in Latin America have notified that, for the first time, efforts to bring the drugs to some of this region’s countries have begun.
