From HAE South Africa:
We are planning a handover from Adrienne de Jongh to Janice Snyman and have restructured our committee to include Jane Rushton, who is in the legal field. Janice is in a new position as COO and will be handling day to day matters. We are still awaiting for our nonprofit company registration and plan to complete our restructure at that point.
We are also planning to initiate a program for training doctors in HAE awareness and current treatment protocols within a framework of angioedema. This program will be formulated by Professors Jonny Peter and Mike Levin and run from the ACARE center in Cape Town. This program will be fully supported by our Regional Patient Advocate Patricia Karani. We are planning to use the posters produced by HAEi in conjunction with this program.
Furthermore, we are active within the Rare Disease group and are participating in their programs as Janice is the official representative of HAE on that panel.
