From President Sarah Smith, AEDAF:
For the 10th anniversary of hae day :-), in addition to taking part in the virtual walk around the globe, AEDAF, with the collaboration of Takeda, has produced a documentary titled “Impredecibles” which premiered on 16 May. The protagonists of the documentary are three members of AEDAF, real patients who have convincingly and emotionally portrayed the challenges of living with HAE and how it impacts their quality of life. With the documentary, we have intended to continue raising public awareness and communicating the realities of living with this rare disease. Dr. Teresa Caballero, a leading HAE expert in the allergy department of La Paz University Hospital in Madrid, also took part in the documentary.
Because of COVID-19 restrictions, the documentary was first shown in a cinema in Madrid to only a very small group of people, but the video went live at the same time and was seen “live” by 67 people. Since then, it has been viewed many times and the feedback has been very positive. The link can be found on AEDAF’s social media (Twitter, Facebook and Instagram) and on the AEDAF website https://angioedema-aedaf.haei.org.
Here is a link to the documentary in Spanish, which includes a short introduction by Carolina Zamora and Maria Ferron of AEDAF’s Executive Committee and Dr. Teresa Caballero: https://youtu.be/zNL3HaUrDUc. And this is a link to the documentary with English subtitles and without introduction: https://youtu.be/h_ch-ZB0i34.
