From Angela Metcalfe, CEO of HAE UK
Goodness, it has been a very busy year for HAE UK! As CEO, I was delighted to attend the 2023 HAEi Regional Conference EMEA in Munich at the beginning of September, and very pleased to be joined by several other patients and Trustees of our charity, as well as Rachel Annals whom so many of you know. It was a very illuminating and educational conference, and on behalf of HAE UK can we record our thanks to everyone involved in the organization, and, of course, to the many and varied speakers. The patient stories of diagnosis were particularly interesting.
We continue to have many surveys and research activities here in the UK and are also delighted that we now have a number of patients on clinical trials, which is extremely exciting. When we gather all this information it is carefully brought together to provide data with which we can hopefully use to implement appropriate change in the care, management, and treatment of HAE patients. It is both essential for us as the patient organization but, of course, also key to healthcare professionals to better understand the patient journey. Sharing the living experience of HAE, we hope supports, steers and guides others in being able to live with this condition, rather than just existing. There is some exciting stuff coming out soon which we will share on publication.
So, I wish you all a very merry Christmas wherever you may be celebrating, and a very happy and particularly healthy 2024.
