10 year achievements – United Kingdom

2021-07-07T16:08:22+02:00July 7, 2021|Europe, Regions, United Kingdom|

This input is dated May 2021 In brief Name for organization: HAE UK 672 members at 1 Jan 2021 Name of approved HAE treatments: Danazol Oxandrolone Tranexamic acid Berinert Cinryze Ruconest Icatibant Lanadelumab Berotralstat (available on the early access to medicines scheme (EAMS) and currently undergoing approval) Fun/interesting [...]

News from Mediterranean, North Africa and British Isles

2021-07-05T14:49:27+02:00July 5, 2021|Africa, Algeria, Europe, HAEi News, Libya, Morocco, Spain, Tunisia, United Kingdom|

During March, the World Allergy Organization (WAO) and the Pan-Arab Society of Allergy, Asthma, and Immunology (PASAAI) organized the WAO Pan Arab Region Virtual Congress with several sessions, including one for HAE. Professor Douagui from Algeria invited me to join the HAE session named “HAE: Identifying & Managing a Potential Killer” that included these [...]

News from Mediterranean, North Africa & British Isles

2020-10-05T11:54:26+02:00October 5, 2020|Africa, Europe, France, HAEi News, Ireland, Libya, Morocco, Portugal, Spain, United Kingdom|

From Regional Patient Advocate Maria Ferron The ACARE Center initiative has been presented to all the countries in the region, and it has been well received. We already have ACARE Centers set up in the United Kingdom, France, Spain, and Portugal and I am expecting that more will be settled by the end of [...]

News from UK

2020-07-08T17:56:37+02:00July 8, 2020|Europe, United Kingdom|

From Chief Executive Officer, Laura Szutowicz, HAE UK It seems no time at all since I wrote the last News from the UK, in early March 2020. It was full of the “I am Number 17” campaign, our wonderful fundraisers running marathons and 24-hour karting challenges and looking forward to the 2020 HAE Global [...]

News from Mediterranean, North Africa and British Isles

2020-07-01T13:59:22+02:00June 29, 2020|Europe, HAEi News, Ireland, United Kingdom|

  From Regional Patient Advocate Maria Ferron Since holding a successful meeting with the North African countries in Algiers, I have introduced the HAEi Member Organization Code of Conduct to all the patient leads in all countries in my region. I also have been working with each country to nominate an Advisor for the Regional [...]

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