From Angela Metcalfe, CEO of HAE UK Goodness, it has been a very busy year for HAE UK! As CEO, I was delighted to attend the 2023 HAEi Regional Conference EMEA in Munich at the beginning of September, and very pleased to be joined by several other patients and Trustees of our charity, as [...]
From Angela Metcalfe, CEO and Rachel Annals, EO, HAE UK: In the last few months, we have had lots of meetings with healthcare professionals and our pharmaceutical company representatives. We have also just returned from the HAEi Regional Conference in Munich and were delighted to have so many UK patients attending and participating in [...]
From Regional Patient Advocate Maria Ferron The main focus during these last 3 months has been the organization of the 2023 HAEi Regional Conference EMEA. After hard work and the great support provided by our HAEi Conference Operations team, it was an enormous pleasure to meet up in Munich with the patients, caregivers, and [...]
From Executive Officer Rachel Annals, HAE UK We have had a busy few months including arranging our next patient day; Saturday 20 May. Patients and their families as well as HAE professionals will join us to hear the latest news relevant to the UK, to meet with the team and other HAE friends. The Rt [...]
From HAE UK Well, what a busy few months it has been for HAE UK! As CEO, Angela Metcalfe was delighted to attend the 2022 HAEi Global Leadership Workshop in Frankfurt, Germany, at the beginning of October, and very pleased to be joined by three other patients and Trustees of our charity, as well [...]
From CEO Angela Metcalfe Well, it’s been a busy few months since I took over as the CEO of HAE UK! We have lots and lots of ideas going forward and a few exciting projects that we are hoping to get off the ground in the next few months. One project that has [...]
From Executive Officer Rachel Annals, HAE UK HAE UK have been working on and supporting a number of projects over the past few months: Our recently launched nurses’ program, developed in conjunction with our nurse advisors, has been developed for nurses who have not dealt with HAE before to learn and understand the condition [...]
From CEO Laura Szutowicz, HAE UK: Over the summer, the UK has seen some changes as the COVID-19 vaccine rollout gathered pace and the weather improved. Children have gone back to school after the holidays, and many members are taking up the reins of life before the pandemic. HAE UK is also seeing some [...]
This input is dated May 2021 In brief Name for organization: HAE UK 672 members at 1 Jan 2021 Name of approved HAE treatments: Danazol Oxandrolone Tranexamic acid Berinert Cinryze Ruconest Icatibant Lanadelumab Berotralstat (available on the early access to medicines scheme (EAMS) and currently undergoing approval) Fun/interesting [...]
From CEO Laura Szutowicz, HAE UK: The run-up to hae day :-) is always fun, with us trying each year to find something that will be new and challenging for our members. This year we started with a quiz on Saturday night. Rachel is our indefatigable question setter and yet again came up with [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
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