From Regional Patient Advocate Maria Ferron The main focus during these last 3 months has been the organization of the 2023 HAEi Regional Conference EMEA. After hard work and the great support provided by our HAEi Conference Operations team, it was an enormous pleasure to meet up in Munich with the patients, caregivers, and [...]
From Regional Patient Advocate Maria Ferron These last months have been hectic due to the organization that the 2022 HAEi Global Leadership Workshop entails, but we were all excited to meet face-to-face again after such a long period. Firstly, I would like to say that I have delivered the posters developed by HAEi requested [...]
From Regional Patient Advocate Maria Ferron I am happy to announce that Lanadelumab was recently approved to be used in hospitals in Portugal. Also, from Portugal, the HAE team has been working on setting up their 2022 actions plans which among others include an HAE awareness campaign (supported with an HAEi poster), creating an [...]
Over the past couple of months, work has progressed on the HAEi Virtual Workshop for the Middle East, North Africa, and Sub Sahara Africa. We have finalized the video recordings, and I have been working with the Regional Patient Advocate for Central Eastern Europe, Benelux, and the Middle East on the new website for [...]
By Maria Ferron, Regional Patient Advocate Mediterranean & Maghreb Countries I was very worried that the 2020 HAEi Regional Workshop Maghreb-North Africa was bound for disaster after experiencing many problems and difficulties in the organization. Then at the last minute, I was advised that Dr. Laurence Bouillet and Dr. Teresa Caballero would not be able [...]
From Regional Patient Advocate Maria Ferron During the last few months, my focus has been on the organizing of the 2020 HAEi Regional Workshop North Africa in Algeria, on 6-8 March. This meeting brought together patients, families, and physicians from Libya, Tunisia, Mauritania, Morocco, and Algeria for the first time. The agenda included a scientific [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
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