During March, the World Allergy Organization (WAO) and the Pan-Arab Society of Allergy, Asthma, and Immunology (PASAAI) organized the WAO Pan Arab Region Virtual Congress with several sessions, including one for HAE. Professor Douagui from Algeria invited me to join the HAE session named “HAE: Identifying & Managing a Potential Killer” that included these [...]
From CEO Laura Szutowicz, HAE UK Groundhog Day! For those of you not familiar with the expression, the day is 2 February, when the groundhog is said to come out of its hole at the end of hibernation. If the animal sees its shadow – for instance if the weather is sunny – it [...]
From CEO Laura Szutowicz, HAE UK Much to my surprise, I am already writing another report for Global Perspectives. At the time of the last one, we in the UK had come out of lockdown, and there was a gradual return to normal. I was kicking myself, thinking we had decided to make the [...]
From Regional Patient Advocate Maria Ferron The ACARE Center initiative has been presented to all the countries in the region, and it has been well received. We already have ACARE Centers set up in the United Kingdom, France, Spain, and Portugal and I am expecting that more will be settled by the end of [...]
From Laura Szutowicz, CEO of HAE UK: Normally at this time of year, we are in overdrive planning for the Patient Days which we hold in October and November, with the Scottish one first and then the National one in November. We were very excited about this year as it was going to be [...]
From Chief Executive Officer, Laura Szutowicz, HAE UK It seems no time at all since I wrote the last News from the UK, in early March 2020. It was full of the “I am Number 17” campaign, our wonderful fundraisers running marathons and 24-hour karting challenges and looking forward to the 2020 HAE Global [...]
From Regional Patient Advocate Maria Ferron Since holding a successful meeting with the North African countries in Algiers, I have introduced the HAEi Member Organization Code of Conduct to all the patient leads in all countries in my region. I also have been working with each country to nominate an Advisor for the Regional [...]
From CEO Laura Szutowicz, HAE UK I am Number 17 Campaign: HAE UK was one of 13 Rare Disease patient groups invited to propose a representative to be featured in the ‘I am Number 17’ campaign about Rare Diseases which is an initiative of Genetic Alliance and backed by Takeda. The basis of the title [...]
From CEO Laura Szutowicz, HAE UK: The last quarter of the year sees our National Patient Days which are always well supported and are a lot of fun as well as very educational. In the UK we are very lucky to have a lot of expert clinicians to call on, and this year our Scottish Patient Day was held [...]
From CEO Laura Szutowicz and Executive Officer Rachel Annals HAE UK has had a busy summer with some great events thanks to our amazing members. Huge thanks to Ann Harding, one of our Trustees, for organizing the Family Fun Day at the Railway Hotel, West Horndon. June and Peter Cole kindly came along to help, and Rachel and Laura were [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
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HAE International (HAEi)
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8700 Horsens
Denmark
gro.ieah@ofni
