From HAE Tunisia
The “ANAOH Tunisia” association officially began its activities in October 2022 with an executive office bringing together four patients and four doctors. The first general meeting was held in March 2023 in the presence of the executive office and 42 patients.
A board meeting was held in November to plan actions for the next three months, as well as to welcome two new board members: General Secretary Oueslati Mohamed and Communications Manager Barhoumi Arbia.
2023 was an important year as we increased the number of patients. The conferences in Egypt and Munich (the 2023 HAEi Regional Conference EMEA) allowed the organization to connect with the HAEi family and get more information about HAE.
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Highlights of 2023 are:
- All members (52) benefited from a medical card.
- Three media actions at regional and national levels took place, which made it possible to raise HAE awareness in the general public.
- Preparing in collaboration with medical teams from the Charles Nicolle hospital in Tunis the project of a reference center for angioedema to improve patient care.
- A medical caravan to two regions in southern Tunisia is planned for the end of December 2023.
- The objectives of ANAOH Tunisia in 2024 are:
- We plan to organize medical caravans to the central and southern regions of Tunisia every three months to diagnose symptomatic patients and help them join the patients’ association.
- A national hereditary angioedema day is planned for the first half of 2024 (date not yet set).
- We will continue efforts with the Minister of Health and the competent authorities to finalize the reference center and create a national register.
