The US HAEA is committed to delivering engaging and informative programs, services, and activities to our expansive membership of over 8,000 individuals. These initiatives aim to unite the HAE community in pursuit of our collective and shared objective: enhancing the quality of life for those with HAE.
2023 US HAEA National Summit – Living Beyond Boundaries: After four long years apart, the HAEA hosted an unforgettable and remarkable 2023 US HAEA National Summit that unified nearly 1,200 HAE friends in Orlando, Florida. Together, we embarked on an amazing 3-day journey filled with thought-provoking youth workshops, general sessions that featured a blend of heartfelt patient stories and informative industry and physician presentations, and fun-filled activities, including an inspiring HAE IN-MOTION® awareness walk.
The Professional-Scientific Track drew an audience of nearly 200 healthcare professionals, physicians, researchers, and scientists, highlighting key updates in HAE diagnosis and research, and also featured an engaging poster-viewing session, showcasing a total of 28 posters that highlighted the latest advancements.
A genuine thank you to our united HAEA community for making this 2023 Summit a memorable success!
>> Read more about the exciting details of this event
HAE IN-MOTION® – Step It Up for HAE: This fall, members of the HAE community embraced our challenge to Step it Up for HAE, and raised awareness through our 2023 HAE IN-MOTION® event! Participants enthusiastically tracked their miles as they engaged in a diverse range of activities, from walking and running, to cycling and swimming. This collective effort aimed to achieve an impressive goal of 30,000 miles, uniting the community in a fun and collaborative way that also served as an effective platform for educating others about HAE!
Additionally, the HAE IN-MOTION® event hosted at our 2023 US HAEA National Summit proved to be an opportunity for members of our community to gather together and mingle after four long years apart. From leisurely walks along the hotel’s beautiful nature trail, to playful lawn games and an ice cream stand, attendees had a chance to unwind and enjoy the outdoors, all while celebrating their HAE journeys.
All funds raised from these events will support key HAEA programs including the Pam King HAEA Scholarship Program, the Chris Whalen HAEA Compassion Fund and the HAE Research Fund.
HAEA Community Blog: The HAEA Community Blog is a platform that allows people with HAE to share their unique stories on a wide variety of topics ranging from emotional health, navigating insurance challenges, and journey to diagnosis and treatment.