From Regional Patient Advocate Fernanda De Oliveira Martins
We are planning to apply the Baseline Burden of Illness Study in Mexico to understand the patient situation in the country better and support them better. The translation and adaptation of the questionnaire is being made by the leader of HAE Mexico.
The US HAEA has created a new Brady Book spring activity. The Spanish version has been shared with Member Organizations in South America and Mexico to be enjoyed by children in those countries as well.
Posting on social media continues, especially promoting activities organized by the Member Organizations to celebrate the rare disease day.
