A lot of things have been going on in my region in March, April and May. Much is, of course, related to the hae day :-) celebration that has kept so many of us busy with all kinds of activities. It’s been amazing to see a great number of people from many countries join in and create awareness for HAE. Here are a few examples:
In Scandinavia, youngster representatives worked hard to raise awareness by engaging as many youngsters from Sweden, Norway and Denmark as possible. Both online sessions and local individual activities were tracked.
Germany hosted a wonderful virtual patient day with a lot of great information for the community.
Austria created a TV broadcast centering around HAE, available online and presented during prime time on national television.
Switzerland shared a gift with all its members, one that could be planted and, if treated correctly, would result in a lucky clover.
These are just some of the activities – all over the region, people were busy raising awareness step by step. Finland, for instance, started a little later but still managed to walk, run, cycle etc. a lot of steps!
Not to forget, building up to the hae day :-) campaign, a lot of time and hard work was invested from all the member countries to build content for the campaign website. All this content will remain and can be found under each country on haei.org. If you haven’t already done so, this is a great chance to read about the fantastic countries in all regions.
Thank you to everyone who was involved in the hae day :-) campaign to make it such a great success and to be global yet still very local in all the different communities.
While all these activities took the main priority, we are currently working on building the Regional Medical Advisory Panel for the region. Some doctors have already agreed to take part, and we are very happy to start this together. In some countries, we are still talking with doctors about their participation.
HAE TrackR – the exciting new app from HAEi where you, amongst other things, can track your attacks, treatments and condition – is now ready. Currently, we are working on more language versions with the member organizations.
Last but not least, the Finnish website hosted on HAEi’s environment is in the making and dialogue has started about the Austrian one.
This year, HAE Scandinavia (Denmark, Norway and Sweden) can celebrate its 20th anniversary. The 2021 Scandinavian Conference by HAE Scandinavia will take place 12 to 14 November 2021 as an in-person conference at the Clarion Hotel Copenhagen Airport.
Again, a callout: If you are a patient, caregiver or physician treating HAE patients in Iceland, the Faroe Islands or Greenland and would like to get in touch, please do not hesitate to reach out to me. It would be great to connect with you.
