From Regional Patient Advocate Patricia Karani hae day :-) 2020 in Kenya was a day to raise awareness amongst the general public, and we got a lot of support from friends and family who chose to participate in our 5k global walk. We also had friends raise awareness through cycling as they remembered all [...]
From Regional Patient Advocate Patricia Karani During February, awareness campaigns were held in Kenya. A story was published in a free newspaper which reaches over 600,000 Kenyans daily. Dr. Priya Bowry held a one-hour training program presenting on the differences between angioedema and HAE. During the training program, I presented a patient’s perspective and gave [...]
From Regional Patient Advocate Patricia Karani I am involved in an exciting HAE International pilot project in Rwanda with a dedicated doctor to locate patients with HAE who have been misdiagnosed. I have established contact with a doctor in Harare, Zimbabwe, who has an interest in HAE. During February, awareness campaigns were held in Kenya. [...]
From President Patricia Karani, HAE Kenya: hae day :-) 2019 in Kenya was a day to raise media awareness amongst the public on our local television networks that are seen countrywide. I was able to feature in specific TV shows where Dr Priya Bowry, a well-known allergist in Nairobi, got to demystify the differences in types of HAE. I gave [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
gro.ieah@ofni
HAE International (HAEi)
Vejlevej 16, 1.
8700 Horsens
Denmark
gro.ieah@ofni
