From Regional Patient Advocate Jørn Schultz-Boysen Having recently started up the RPA task for DACH and Nordics, I had the pleasure to meet face to face with Lucia Schauf of HAE Germany in September. I should also have met with Adelheid Huemer and Christian Müllner of HAE Austria as well as Helene Saam of [...]
From Regional Patient Advocate Jørn Schultz-Boysen My name is Jørn Schultz-Boysen, and I am extremely happy to be appointed as the Regional Patient Advocate for the Nordics (covering Denmark, the Faroe Islands, Finland, Greenland, Iceland, Norway, and Sweden) as well as Austria, Germany, and Switzerland (also referred to as DACH). I look very much [...]
The 2017 version of the HAE Austria patient meeting took place in Linz with the participation of more than 20 HAE patients. The HAE Austria President Adelheid Huemer gave an overview of the development over the last decade – from two members in 2006 to more than 50 today and from only Berinert for emergency [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
gro.ieah@ofni
HAE International (HAEi)
Vejlevej 16, 1.
8700 Horsens
Denmark
gro.ieah@ofni
