From Regional Patient Advocate Javier Santana: I am continuing to provide support to the member organizations and HAE patients in Guatemala, Panama, El Salvador, and the Dominican Republic through HAE international programs and services, and by helping to identify and refer more HAE patients.
From Regional Patient Advocate Javier Santana: I am continuing to provide support to the member organizations and HAE patients in Guatemala, Panama, El Salvador, and the Dominican Republic through HAE international programs and services, and by helping to identify and refer more HAE patients.
From Regional Patient Advocate Javier Santana: It was exciting to see the patients in Panama getting involved in Rare Disease Day activities. Members of HAE Panama generated HAE awareness and educated the public by participating in media interviews to discuss the disease and joined in on special rare disease events along with 11 other rare [...]
From Regional Patient Advocate Javier Santana A European citizen will be temporarily relocating to El Salvador to participate in a student internship, and her parent inquired about available treatment and physician referral. The patient was directed to a knowledgeable physician in the country. I am continuing to provide support to the member organizations and HAE [...]
From Regional Patient Advocate Javier Santana: I have held discussions with a pharma company from Costa Rica who wishes to introduce a generic HAE treatment to Costa Rica, Guatemala, and Peru. The company is currently engaged in discussions with doctors in these countries. The first National Forum of Rare Diseases in Costa Rica was held [...]
From Regional Patient Advocate Javier Santana I have held discussions with a pharma company from Costa Rica who wishes to introduce a generic HAE treatment to Costa Rica, Guatemala, and Peru. The company is currently engaged in discussions with doctors in these countries. A European citizen will be temporarily relocating to El Salvador to participate [...]
From HAE patient Rosa María Perez: Epinephrine, Hydrocortisone, Prednisone, Benadryl ... with every health crisis there is a bombardment of medicines with which nothing is resolved. The edema was quick – “in crescendo” – until it reached a limit when it stopped, and then slowly began to decrease. Pediatricians and allergists agreed that it was an allergic process – allergy [...]
From Regional Patient Advocate Javier Santana: Costa Rica has had its 1st Costa Rican Allergy Congress where Dr. Mario Martínez, who helps the group of HAE patients in the country, offered a comprehensive presentation on HAE to all attending physicians.
From Regional Patient Advocate Javier Santana: The HAE patient group in Panama is now officially and legally registered in the country. The group, together with Dr. Olga M. Barrera, has participated in several conferences in the interior of the country to educate professionals on HAE. Muhammad Rawat, the group leader, reports that the group of patients is quite active working along with [...]
From Regional Patient Advocate Javier Santana: December 2019: A success during the last few months includes contacting Dr. Patricia Latour, an Allergist and Epidemiologist from the Dominican Republic. Dr. Latour is president of the Latin American Society of Allergy, Asthma and Immunology. According to information provided by Dr. Latour, the Dominican Republic has identified 22 patients in clinics around the country. Dr. Latour [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
gro.ieah@ofni
HAE International (HAEi)
Vejlevej 16, 1.
8700 Horsens
Denmark
gro.ieah@ofni
