This input is dated May 2021 >> View content in Español In brief Name for organization: HAE Costa Rica Approx. 20 members at 1 Jan 2021 (the association registration is pending) Name of approved HAE treatments: Danazol Fun/interesting facts The food & gastronomy. The great variety of [...]
The biannual HAE Global Conference has been an excellent opportunity for people with HAE to meet, exchange experiences, and learn from each other over the years. Following the 2018 HAE Global Conference in Vienna, Austria, organizing a workshop for fellow Latin American patients was a must. Originally the plan was to hold the first-ever [...]
During the past months, groups of people with HAE in the Central American and Caribbean region have been quite active in seeking the support of citizens and the attention of government entities to achieve access to treatments for HAE. Countries such as Panama and Costa Rica have held meetings with important government officials to [...]
I participated in an interview with Dr. Olga Barrera in Panama for a national newspaper to highlight HAE patients’ situation in the country. In Puerto Rico, I have had several communications with Dr. Rafael Zaragoza, representatives of pharmaceutical companies, lawmakers, and legislative advisers about the reconsideration of the law that would give HAE patients [...]
From Regional Patient Advocate Javier Santana During the month of December, we are hosting another webinar in Spanish with Dr. Rafael Zaragoza on HAE and COVID-19 in order to update the HAE community from the region on the latest medical information. We expect this event will be well attended. We are also excited that [...]
Due to the restrictions that have been implemented in several countries, not many countries held events related to hae day :-) 2020. In Panama the group of patients managed two religious services that were dedicated on behalf of the health of patients with HAE in that country. Religious services were broadcast live on television [...]
From Regional Patient Advocate Javier Santana During the past months, many patients in the Latin American region have been pending all the information related to the global pandemic coronavirus COVID-19. During the month of March, a virtual conference was held in Spanish so that Spanish-speaking patients who wanted to clarify doubts about coronavirus and [...]
HAE DOMINICAN REPUBLIC Dominican Republic · Central America and Caribbean On this page we have pulled together presently available information relevant for HAE patients and caregivers in Dominican Republic. HAE online in Dominican Republic Visit our [...]
The HAE International map has been updated with an HAE Care Center as well as an HAE knowledgeable physician in Cuba – please see https://haei.org/hae-member-countries/cuba.
From Regional Patient Advocate Javier Santana: I am continuing to provide support to the member organizations and HAE patients in Guatemala, Panama, El Salvador, and the Dominican Republic through HAE international programs and services, and by helping to identify and refer more HAE patients.
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
gro.ieah@ofni
HAE International (HAEi)
Vejlevej 16, 1.
8700 Horsens
Denmark
gro.ieah@ofni
