I participated in an interview with Dr. Olga Barrera in Panama for a national newspaper to highlight HAE patients’ situation in the country. In Puerto Rico, I have had several communications with Dr. Rafael Zaragoza, representatives of pharmaceutical companies, lawmakers, and legislative advisers about the reconsideration of the law that would give HAE patients [...]
From Regional Patient Advocate Javier Santana During the past months, many patients in the Latin American region have been pending all the information related to the global pandemic coronavirus COVID-19. During the month of March, a virtual conference was held in Spanish so that Spanish-speaking patients who wanted to clarify doubts about coronavirus and [...]
In the second half of March, HAEA Puerto Rico held its Patient Summit 2019 in San Juan. The main speakers were Professor Sandra Christiansen from the US HAEA Angioedema Center at UCSD, Director Bruce Zuraw from the US HAEA Angioedema Center at UCSD, MD Rafael Zaragoza who is President of the Puerto Rican Association of [...]
HAE PUERTO RICO HAEA Puerto Rico Puerto Rico · Central America and Caribbean On this page we have pulled together presently available information relevant for HAE patients and caregivers in Puerto Rico. HAE online in Puerto Rico [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
gro.ieah@ofni
HAE International (HAEi)
Vejlevej 16, 1.
8700 Horsens
Denmark
gro.ieah@ofni
