It has been a pleasure starting as the Regional Patient Advocate for the Nordics and Germany, Austria and Switzerland. It is fantastic to meet – mostly online – with many of the member organizations’ representatives as there are so many things to talk about. And not least for me to learn from these amazing [...]
From Regional Patient Advocate Jørn Schultz-Boysen Having recently started up the RPA task for DACH and Nordics, I had the pleasure to meet face to face with Lucia Schauf of HAE Germany in September. I should also have met with Adelheid Huemer and Christian Müllner of HAE Austria as well as Helene Saam of [...]
From Regional Patient Advocate Jørn Schultz-Boysen My name is Jørn Schultz-Boysen, and I am extremely happy to be appointed as the Regional Patient Advocate for the Nordics (covering Denmark, the Faroe Islands, Finland, Greenland, Iceland, Norway, and Sweden) as well as Austria, Germany, and Switzerland (also referred to as DACH). I look very much [...]
Similar to most other organizations, HAE Scandinavia had to conduct the General Assembly via Zoom. This time we used Zoom Webinar which gave us a lot of functionality when it comes to polls etc. Although everyone in Scandinavia is sick and tired of the corona restrictions, we all adhere and hope for the world [...]
By President Henrik Balle Boysen, HAE Scandinavia: During the weekend 8-10 November 2019 HAE Scandinavia conducted its third Scandinavian conference – this time in Oslo, Norway. Around 125 participants from Denmark, Norway and Sweden as well as four patients from Finland attended this very interesting meeting. The conference focus was on changing the paradigm for treating HAE. HAE Scandinavia presented the [...]
Leading HAE experts from Scandinavia will be speaking at the third HAE Scandinavia conference taking place in Oslo, Norway 8-10 November 2019. Among the speakers are: Christian Jervelund from Copenhagen Economics – speaking on health and socioeconomic topics underlining the importance of access to the right treatment, Dr Linn Landrø from Oslo University Hospital, Norway – speaking on [...]
Leading HAE experts from Scandinavia will be speaking at the third HAE Scandinavia conference taking place in Oslo, Norway 8-10 November 2019. Among the speakers are: Christian Jervelund from Copenhagen Economics – speaking on health and socioeconomic topics underlining the importance of access to the right treatment, Dr Linn Landrø from Oslo University Hospital, Norway – speaking on [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
gro.ieah@ofni
HAE International (HAEi)
Vejlevej 16, 1.
8700 Horsens
Denmark
gro.ieah@ofni
