By Nanna Boysen and Victoria Schultz-Boysen, board members of HAE Scandinavia HAE Scandinavia celebrated its 20th anniversary on 12-14 November 2021 in Copenhagen, Denmark. Considering the global COVID-19 challenges, we are beyond grateful that patients, caregivers, physicians, and pharma companies could get together again. Not only did HAE Scandinavia celebrate its first two decades [...]
From Regional Patient Advocate Jørn Schultz-Boysen We are still working on bringing together the Regional Medical Advisory Panel for the region. Some doctors are on board, and for some countries, we are waiting for a confirmation of who should join. The first round of dialogue has already been ongoing. Still, it will be great [...]
HAE Scandinavia has appointed the Board for the next two years: Chairman Henrik Balle Boysen (Denmark), Vice Chairman Jørn Schultz-Boysen (Denmark), Treasurer Karina Langsager (Denmark), Secretary Erik Hovgaard Hansen (Denmark), Karen Jespersen-Hansen (Denmark), Youngsters responsible Nanna Maria Boysen (Denmark), Youngsters responsible Victoria Schultz-Boysen (Denmark), Camilla Eriksson (Sweden), Cecilia Grahn (Sweden), Ann Helen [...]
No matter where people with HAE gather in large groups – for example, at national or international meetings and conferences – there is joy of getting together with HAE friends old and new. This was also the case when HAE Scandinavia held their combined 2021 Scandinavian Conference and its 20th anniversary in mid-November. The [...]
From Regional Patient Advocate Jørn Schultz-Boysen The Regional Medical Advisory Panel (RMAP) is still taking form for the region. While some doctors have already agreed to participate, some countries are still in dialogue. The first dialogue is ongoing for the panelists who have joined, and interesting work and findings are already coming in. I [...]
HAE Scandinavia will be hosting the fourth Scandinavian conference 12-14 November 2021 in Copenhagen, Denmark, this time with the theme “The Power of Prophylaxis”. HAE Scandinavia is celebrating its 20th anniversary this year, and there will therefore be a few surprises for all participants at the conference. Three more Norwegian hospitals have been added [...]
After an amazing and successful hae day :-) with lots of activities from HAE patients, caregivers, health care professionals and industry, it continues to be wonderful reading about all the countries that participated on haei.org. The information about the countries, from past to present and looking ahead towards the next ten years is both [...]
This input is dated May 2021 >> View content in Svenska In brief Name for organization: HAE Scandinavia – Sweden 439 members at 1 Jan 2021 Name of approved HAE treatments: Berinert Cinryze Firazyr Ruconest Tranexamic acid Fun/interesting facts Sweden is one of the world’s most sea-rich [...]
A lot of things have been going on in my region in March, April and May. Much is, of course, related to the hae day :-) celebration that has kept so many of us busy with all kinds of activities. It’s been amazing to see a great number of people from many countries join [...]
It has been a pleasure starting as the Regional Patient Advocate for the Nordics and Germany, Austria and Switzerland. It is fantastic to meet – mostly online – with many of the member organizations’ representatives as there are so many things to talk about. And not least for me to learn from these amazing [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
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