Boysen

About Henrik Balle Boysen

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So far Henrik Balle Boysen has created 443 blog entries.

Getting ready for the 2020 HAE Global Conference

2020-01-03T13:47:47+02:00December 30, 2019|HAEi News|

The 2020 HAE Global Conference in Frankfurt, Germany is only about five months away, and at HAE International everyone is doing their part to get the largest HAE gathering ever ready. “At this point, all travel grants have been allocated to patients and caregivers from around the globe, and every day we are receiving new registrations for the conference. Momentarily we have [...]

News from Panama

2020-01-03T13:48:49+02:00December 30, 2019|Panama|

From Regional Patient Advocate Javier Santana: The HAE patient group in Panama is now officially and legally registered in the country. The group, together with Dr. Olga M. Barrera, has participated in several conferences in the interior of the country to educate professionals on HAE. Muhammad Rawat, the group leader, reports that the group of patients is quite active working along with [...]

News from Dominican Republic

2020-01-03T13:54:22+02:00December 30, 2019|Dominican Republic|

From Regional Patient Advocate Javier Santana: December 2019: A success during the last few months includes contacting Dr. Patricia Latour, an Allergist and Epidemiologist from the Dominican Republic. Dr. Latour is president of the Latin American Society of Allergy, Asthma and Immunology. According to information provided by Dr. Latour, the Dominican Republic has identified 22 patients in clinics around the country. Dr. Latour [...]

News from South Korea

2020-01-03T13:52:48+02:00December 30, 2019|East & Southeast Asia, South Korea|

From Regional Patient Advocate Fiona Wardman: The first of its kind patient meeting was held in Seoul, South Korea on 9 November 2019 with presentations from Korean doctors and patients, and HAE International. Following the meeting a patient group was formed. The group already has a website up and running at https://haekorea.haei.org/.

News from Georgia

2020-01-03T13:54:55+02:00December 30, 2019|Georgia|

From Regional Patient Advocate Michal Rutkowski: Georgia is a recent addition to the HAE International family, becoming a member in late October. The driving HAE force is Professor Maia Gotua from the Allergy & Immunology Center in Tbilisi, who looks after many patients with HAE. Maia Goyua puts lots of effort to finally having HAE therapies approved in the country, and she [...]

News from Belarus

2020-01-03T13:55:21+02:00December 30, 2019|Belarus|

From Regional Patient Advocate Michal Rutkowski: HAE Belarus organized the annual summit on 26 October 2019 in the Belarusian Research Center for Pediatric Oncology, Hematology and Immunology in Borovlyany, Minsk region. The meeting gathered approximately 40 participants: patients, caregivers, physicians and pharmaceuticals’ representatives from Takeda Belarus. I had the pleasure of attending the meeting and to present the ‘Achievements and Perspectives of the HAE International [...]