The HAE patient group in Colombia has now been legally constituted as Asociación Colombiana para Angioedema Hereditario. Jessika Torres Flórez is President of the organization while Carolina Torres Flórez is Vice President. See more at https://haei.org/location/hae-in-colombia.
From President Adrienne de Jongh, HAE South Africa: The Global Access Program importing Ruconest is now running smoothly and proving to be very successful. There is a fair amount of administration involved though and we are grateful that the staff at the Lung Clinic at Groote Schuur Hospital have been so helpful. We have been busy with the legal work [...]
The 18th General Assembly of the Swiss HAE Association took place 8 November 2019. President Helene Saam welcomed 22 members. All agenda items were decided unanimously. The next year’s meeting will take place in Zurich on 20 June 2020 - in addition to lectures, there will be a visit to the studios of SRF (Schweizer Radio und Fernsehen).
From Sandy Chan, HAE HK: HAE HK was formed in August 2019 by patients in Hong Kong with HAE and incorporated as a limited company in Hong Kong on 7 November 2019. Tax exemption will be applied. HAE HK aims to achieve optimal standards of care and treatment for all people affected by HAE living in Hong Kong so that [...]
From CEO Fiona Wardman, HAE Australasia: HAE Australasia has submitted the ethics application to join the Global Registry in Australia. We hope to have a positive answer very soon so we can start rolling out the project around the country. Once again this year, we attended the Australasian Society of Clinical Immunology & Allergy (ASCIA) Conference, where we had the [...]
We are happy to inform you that HAE International has been joined by country no. 84. A warm welcome to Pakistan, represented by national contact Moazzam Farooq. You can follow HAE Pakistan via https://www.facebook.com/groups/142032642667972.
By Michal Rutkowski, Regional Patient Advocate for Central and Eastern Europe, Gulf Region & Middle East: The penultimate weekend of October 2019 saw the largest gathering of the year of the HAE International Central Eastern Europe community. As has become the tradition, the capital city of Poland hosted for the fourth consecutive time the annual regional advocacy event, dedicated to [...]
By Natasa Angjeleska, Regional Patient Advocate for South Eastern Europe: We successfully managed to realize the fourth regional HAE International South Eastern Europe workshop at the Marriott Hotel in Skopje, North Macedonia 27-29 September 2019. We had 85 participants representing 11 countries from the region, including one guest physician coming from Belarus that expressed interest to join us. The composition of [...]
By President Henrik Balle Boysen, HAE Scandinavia: During the weekend 8-10 November 2019 HAE Scandinavia conducted its third Scandinavian conference – this time in Oslo, Norway. Around 125 participants from Denmark, Norway and Sweden as well as four patients from Finland attended this very interesting meeting. The conference focus was on changing the paradigm for treating HAE. HAE Scandinavia presented the [...]