By Michal Rutkowski, Regional Patient Advocate for Central and Eastern Europe, Gulf Region & Middle East: The penultimate weekend of October 2019 saw the largest gathering of the year of the HAE International Central Eastern Europe community. As has become the tradition, the capital city of Poland hosted for the fourth consecutive time the annual regional advocacy event, dedicated to [...]
From Regional Patient Advocate Michal Rutkowski: It is very exciting to see the work of Dr Mariam Movsisyan from Allergology and Clinical Immunology Department of Yerevan State Medical University in Armenia. With the help of the Armenian Relief Fellow Alumni Association and an EU grant, ten HAE seminars were organized in four regions of the country. To understand more how rare and [...]
From Regional Patient Advocate Michal Rutkowski: At this point, Armenia does not have an HAE organization and HAE patients do not have access to any modern therapies. I have established contact with an HAE physician in Yerevan with a few HAE patients under her supervision. This doctor is very interested in collaborating with HAEi.