From Regional Patient Advocate Michal Rutkowski Hello HAEi Friends! I truly hope you had an enjoyable and relaxing summertime spent with your loved ones. I am happy to catch up with you again and to share what happened over June, July, and August. It has been a very busy time dominated by the 2023 [...]
From Regional Patient Advocate Michal Rutkowski In this report, I will focus on the Middle East, as so much has been going on there in just a few months. Indeed, the last three months have been the busiest period since I was appointed Regional Patient Advocate (RPA) for this region. At the same time, [...]
From Regional Patient Advocate Michal Rutkowski I am excited to share with you that after a long pandemic period, I had the pleasure of attending a patient meeting in person organized in Yerevan in June by HAE Armenia. It was so amazing to meet local patients, caregivers, and HAE expert physicians and to focus [...]
From Regional Patient Advocate Michal Rutkowski I hope you have had an enjoyable holiday season and went energized into the new year with advocacy motivation. So many things have happened since the last edition of Global Perspectives magazine, and I am happy to share it all with you. I was privileged to attend numerous [...]
By Michal Rutkowski, Regional Patient Advocate for Central and Eastern Europe, Gulf Region & Middle East: The penultimate weekend of October 2019 saw the largest gathering of the year of the HAE International Central Eastern Europe community. As has become the tradition, the capital city of Poland hosted for the fourth consecutive time the annual regional advocacy event, dedicated to [...]
From Regional Patient Advocate Michal Rutkowski: It is very exciting to see the work of Dr Mariam Movsisyan from Allergology and Clinical Immunology Department of Yerevan State Medical University in Armenia. With the help of the Armenian Relief Fellow Alumni Association and an EU grant, ten HAE seminars were organized in four regions of the country. To understand more how rare and [...]
HAE International is happy to inform you that country no. 79 - Armenia - has just been added to our global map. The national contact in Armenia is Artashes Harutyunyan.
From Regional Patient Advocate Michal Rutkowski: At this point, Armenia does not have an HAE organization and HAE patients do not have access to any modern therapies. I have established contact with an HAE physician in Yerevan with a few HAE patients under her supervision. This doctor is very interested in collaborating with HAEi.
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
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