From Regional Patient Advocate Michal Rutkowski Hello HAEi Friends! I truly hope you had an enjoyable and relaxing summertime spent with your loved ones. I am happy to catch up with you again and to share what happened over June, July, and August. It has been a very busy time dominated by the 2023 [...]
From Regional Patient Advocate Michal Rutkowski In this report, I will focus on the Middle East, as so much has been going on there in just a few months. Indeed, the last three months have been the busiest period since I was appointed Regional Patient Advocate (RPA) for this region. At the same time, [...]
From Regional Patient Advocate Michal Rutkowski It was a privilege to see you in person again in Frankfurt, Germany, at the 2022 HAEi Global Leadership Workshop! It’s incredible how powerful and inspirational a patient gathering can be, and to see all the friends after such a long time is always additional value. Much [...]
From Regional Patient Advocate Michal Rutkowski I am excited to share with you that after a long pandemic period, I had the pleasure of attending a patient meeting in person organized in Yerevan in June by HAE Armenia. It was so amazing to meet local patients, caregivers, and HAE expert physicians and to focus [...]
From Regional Patient Advocate Michal Rutkowski I am excited to announce that the HAEi global family now comprises 95 Member Organizations. One of the most recent additions is HAE Oman, represented by Maryam Al Balushi. So, HAE Oman, welcome on board! March, April, and May 2022 have been very busy with different advocacy activities. [...]
From Regional Patient Advocate Michal Rutkowski The September-October period was intense in terms of my involvement in various activities in the regions. First of all, the main activity was the preparation of the 2020 HAEi Virtual Regional Workshop Central Eastern Europe & Benelux, which is extremely time-consuming. With the global pandemic limitations, the HAEi [...]
From Regional Patient Advocate Michal Rutkowski I have successfully presented the Regional Advisory Group concept and Code of Conduct to all member organizations from Central Eastern Europe and Benelux. None of them had any doubts following the idea, and all countries declared participation in the project. Also, together with Advocacy Contractor Rashad Matraji, we have [...]
By Michal Rutkowski, Regional Patient Advocate for Central and Eastern Europe, Gulf Region & Middle East: The penultimate weekend of October 2019 saw the largest gathering of the year of the HAE International Central Eastern Europe community. As has become the tradition, the capital city of Poland hosted for the fourth consecutive time the annual regional advocacy event, dedicated to [...]
We are happy to inform you that HAE International has been joined by country no. 80. A warm welcome to Estonia, represented by national contact Kristal Kaljula.
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
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HAE International (HAEi)
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8700 Horsens
Denmark
gro.ieah@ofni
